Mar. 10th, 2012


Mar. 10th, 2012 12:32 am
arcadia28: 4 (6)

I found a mailing list years ago with i first got diagnosed with n24, that was basically run by people who had either the same or similar condition. This over the years has helped me less alone and given me support and advice. I have also become very much involved with an organisation that sprung out from it in the US. This has helped me have some purpose in my life and ive written a couple of articles for them.

But recently there has been a guy from the uk on the list who claims he has n24 and has approached me about my benefits. What ones do i have, what medical references do i use. He also asked if he could have a copy of one of my hospital letters that explain about my condition but with the personal details taken out. I didnt like that idea and said no. I felt that he wouldve just stuck his name on it and used it for his claim. I gave him a vague description of what was included and told him he should really get his GP to refer him to a proper sleep specialist (he didnt say anythig back about this).

He then also tried to worry me into saying that his claim got denied and i mau have the same problem especially with the asessment interview and they are trying to get as many people back into work as possible. And what to expect. This of course distressed me. Apparently he's won his tribunal by giving an emotional plea of wanting to work. Something i have said many a time in posts, that i think he has used. I do think hes a fraudster looking to get benefits with putting the minimalist work into it. I think he has scoured the list and thought, oh this will be easy. Hes already managed to get some melatonin that i take and he says he can only use it in short durations occasionally. Otherwise he feels sick. I know that if a regular person takes melatonin who doesnt have any sleep problems this can cause a prrson to feel sick as there would be too much melatonin in your body.

It makes me angry that someone can use this condition as an excuse to do little work. To get 'free' money. And to think that hes actually won makes me feel sick.

Im think im going to notify people on the list that i think theres a fraudster on the list and look into the message archive to see if im right and what evidence there is.

Posted via LiveJournal app for iPhone.


Mar. 10th, 2012 01:52 am
arcadia28: 4 (4)

It gets worse, the guy is even trying to steal my identity. 

Our stories are near enough the same. Apparently he's had n24 since birth and he used to have a lot of time off from school to sleep. He didn't get diagnosed till his late 20s. 

Me - i've had n24 since birth, my mum distinctly remembers the problems with sleep as a newborn and where the doctors reasurred her that i would grow out of it and that i was just a sleepy baby, nothing to worry about. Of course i didn't grow out of it, it stayed the same and because of school got worse. 

My attendance was in shambles i had social workers galore on my case, trying to get me into school. No one could understand my reluctance, despite me and my mum telling them till we were blue in the face i really struggled with sleeping. We even when to the docs so reguarly, i must of seen every single one in the surgery by the time i was 12. The days i was off sick, i would just sleep.

I didn't get diagnosed till i was 19. 

We both live in england. 

Difference is, he doesn't go to a sleep clinic....
He self diagnosed himself
And his GP 'hadn't even heard of it, but just goes by what i say...'

Now, in your honest opinion, am i on to something here or am i just being paranoid?

I am the sound of love's arriving
Echoed softly on the sand
Lay your head upon my shoulder
Lay your hand within my hand
I give you all that I am


arcadia28: 4 (Default)

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